Cooperating on innovation to make CENTRAL EUROPE more competitive

To improve skills and entrepreneurial competences for advancing economic and social innovation in central European regions

Innovative patient centred health care services – advantages of establishing a close network in celiac disease patient health care

PROJECT SUMMARY

Healthy and active aging is one of the greatest social challenges in EU facing longer life expectancy. Early prevention of chronic diseases that have severe impact on general well-being of patients is extremely important if we want to reach this goal and ensure sustainable health care systems in CE. Lack of development and promotion of innovative quality health services, disease management models and education have a profound negative effect. To tackle this challenge, this project will demonstrate development and pilot testing of innovative health service model in management of celiac disease (CD), by using CANVAS business model, aiming at improving knowledge, management and organizational capacities. CD is a model of a lifelong disease caused by ingestion of cereals. It affects 1-3% of population (up to 5 million in CE) of all ages. It is estimated that 80% of people having CD are un/misdiagnosed. Diagnostic delay remains 6-10 years. Undiagnosed/untreated CD leads to a number of severe (potentially preventable) complications: infertility, osteoporosis, neurological disorders, malignancies, etc., which have profound effect on quality of life. CE regions have different knowledge capacities and health care systems, which are insufficient and only partially address current problems. By transnational cooperation and analysis of differences in diagnostic approach, experts' knowledge and patient awareness and satisfaction and benchmarking of existing patient management models we will gain important data to develop e-learning tools for health care personnel and patients, to close the knowledge gap between stakeholders and to improve patient support. In each region an innovative pilot services will be tested, based on which a universal model will be designed including organizational improvements and implementation of best practices. This will enable us to develop a patient centered health care service, and thus ensure healthy and active aging of CD patients.


PROJECT OUTPUTS

Project output numberProject outputProject output quantification
Output O.T4.1.1Policy recommendations1,00
Output O.T1.1.1Assessment of Celiac Disease management practices1,00
Output O.T2.1.1E-learning tool for HCPs1,00
Output O.T2.2.1E-learning tool for patients1,00
Output O.T2.3.1ICT App for HCPs1,00
Output O.T3.1.1Development and implementation of 10 pilot projects10,00


FOCUS ON CELIAC DISEASE – PATIENT CENTRED CELIAC DISEASE MANAGEMENT

E-guidelines protocol of celiac disease treatment for health care professionals was designed by partnership to help health care professionals to improve diagnostic proces and management of celiac disease.

 This e-brochure was prepared building on available knowledge from bilateral SLO-HU LQ-CELIAC project.

Focus on CD A5 ENG.pdf

Focus on Celiac Disease – patient centred celiac disease management

 Nuša 11 years and mom Simona: »The day, when our oldest daughter was diagnosed with coeliac disease was one of the happiest days for our family. The diagnosis “coeliac disease” was among the suspicions of doctors for the best and the least harmful disease. We were happy, that the marathon from one doctor to another had finished and that we finally identified what was wrong and how we can help our daughter«. 

 CE regions have different knowledge capacities. To close the knowledge gap between HCPs and to improve their knowledge as well as diagnostic process, we have prepared e-guidelines protocol for celiac disease treatment.

E-guidelines protocol of celiac disease treatment.pdf

PROJECT NEWS

PROJECT IN NUMBERS

0

PARTNERS

0

TOOLS

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PILOT PROJECTS

0

POLICY RECOMMENDATION

project duration

Start Date

June 2016

End Date

may 2019

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