CHALLENGES TACKLED BY THE FOCUS IN CD PROJECT

Among the greatest social challenges facing Europe is longer life expectancy with aging population. This fact has also contributed to increased burden of chronic diseases among European population in the past decade. Lack of development and promotion of innovative quality health service, disease management models and education in the field of management of chronic diseases, is affecting sustainability of central European health care systems.

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PROJECT SUMMARY


CD is a model of a lifelong disease caused by ingestion of cereals. It affects 1-3% of population (up to 5 million in central Europe) of all ages. It is estimated that 80% of people having CD are un/misdiagnosed. Diagnostic delay remains 6-10 years. Undiagnosed/untreated CD leads to a number of severe (potentially preventable) complications: infertility, osteoporosis, neurological disorders, malignancies, etc., which have profound effect on quality of life.

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How to set up a safe gluten-free kitchen?


To the health of patients with coeliac disease even the smallest mistakes and contamination of the gluten-free products can be harmful.
In order to ensure a safe, strict gluten-free diet it is important to buy gluten-free products, but also to store and prepare them properly to be able to produce a real gluten-free meal as a result. To help with tips and suggestions on how to prepare the kitchen surfaces and rearrange the articles in the kitchen, check the “Gluten- free Kitchen” video:


Focus IN CD presentation at AOECS General Assembly

27. - 29. september 2018

Two project partners - Hungarian Coeliac Society and Heim Pal Hospital will present the FOCUS IN CD project, as a good example of the European idea, informing the coeliac associations’ leaders, who are the best experts’ body to distribute the result of the project (e.g. e-learning tool for patients and healthcare professionals, smartphone application, results of surveys, lay language videos, etc.) and elaborate models for using in the future these tools as many countries as possible.

Focus IN CD presentation at Croatian Paediatrician Congress nad Congress of Paediatric Nurses

11. – 14. October 2018

Prof. dr. Goran Palčevski, dr. med. will present the results of Focus IN CD surveys, related to Croatian health care professional’s knowledge about celiac disease.

Poster and stand will be prepared by Croatian celiac disease Society and Primorje Gorski Kotar County, where available information about project will be shared.

Focus IN CD 7th steering committee meeting in Vienna

18. - 19. October 2018

Venue: House of European gastroeneterology

Focus IN CD at UEG (United European Gastroeneterology) week 2018 in Vienna

20. - 24. October 2018

https://www.ueg.eu/week/

Focus IN CD results presentation - lecture, posters

Focus IN CD WORKSHOP to support

08. Februar 2019 www.ispz-hauner.de

Implementation and testing of new service to improve transition from paediatric to adult health care

PROJECT NEWS

19.05.2018

News

World Celiac Day

On 19th May 2018, the German partners held its national campaign at the celebrations of the World-Celiac-Day which is organized by the German Celiac  Disease Patient’s Society (DZG).
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World Celiac Day

Did you know? The results of the Focus IN CD survey

Our German partner presented the results of the Focus IN CD survey in the German celiac society journal. Read the article...

Project outputs

ICT application for doctors

E-learning tool for HealTh Care Practitioners

Policy recommendations

10 pilot projects

E-LEARNING TOOL FOR patients

Assessment of Celiac Disease management practices

PROJECT IN NUMBERS

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PARTNERS

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TOOLS

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PILOT PROJECTS

0

POLICY RECOMMENDATION

project duration

Start Date

June 2016

End Date

may 2019

contacts

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