Cooperating on innovation to make CENTRAL EUROPE more competitive

To improve skills and entrepreneurial competences for advancing economic and social innovation in central European regions

Innovative patient centred health care services – advantages of establishing a close network in celiac disease patient health care

PROJECT SUMMARY

Healthy and active aging is one of the greatest social challenges in EU facing longer life expectancy. Early prevention of chronic diseases that have severe impact on general well-being of patients is extremely important if we want to reach this goal and ensure sustainable health care systems in CE. Lack of development and promotion of innovative quality health services, disease management models and education have a profound negative effect. To tackle this challenge, this project will demonstrate development and pilot testing of innovative health service model in management of celiac disease (CD), by using CANVAS business model, aiming at improving knowledge, management and organizational capacities. CD is a model of a lifelong disease caused by ingestion of cereals. It affects 1-3% of population (up to 5 million in CE) of all ages. It is estimated that 80% of people having CD are un/misdiagnosed. Diagnostic delay remains 6-10 years. Undiagnosed/untreated CD leads to a number of severe (potentially preventable) complications: infertility, osteoporosis, neurological disorders, malignancies, etc., which have profound effect on quality of life. CE regions have different knowledge capacities and health care systems, which are insufficient and only partially address current problems. By transnational cooperation and analysis of differences in diagnostic approach, experts' knowledge and patient awareness and satisfaction and benchmarking of existing patient management models we will gain important data to develop e-learning tools for health care personnel and patients, to close the knowledge gap between stakeholders and to improve patient support. In each region an innovative pilot services will be tested, based on which a universal model will be designed including organizational improvements and implementation of best practices. This will enable us to develop a patient centered health care service, and thus ensure healthy and active aging of CD patients.


PROJECT OUTPUTS

Project output numberProject outputProject output quantification
Output O.T4.1.1Policy recommendations1,00
Output O.T1.1.1Assessment of Celiac Disease management practices1,00
Output O.T2.1.1E-learning tool for HCPs1,00
Output O.T2.2.1E-learning tool for patients1,00
Output O.T2.3.1ICT App for HCPs1,00
Output O.T3.1.1Development and implementation of 10 pilot projects10,00

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SURVEYS

FOCUS ON CELIAC DISEASE – PATIENT CENTRED CELIAC DISEASE MANAGEMENT

E-guidelines protocol of celiac disease treatment for health care professionals was designed by partnership to help health care professionals to improve diagnostic proces and management of celiac disease.

 This e-brochure was prepared building on available knowledge from bilateral SLO-HU LQ-CELIAC project.

Focus on CD A5 ENG.pdf

Focus on CD A5 SLO.pdf

Focus on CD A5 HUN.pdf

Focus on CD A5 CRO.pdf

Focus on CD A5 ITA.pdf

Focus on Celiac Disease – patient centred celiac disease management

 Nuša 11 years and mom Simona: »The day, when our oldest daughter was diagnosed with coeliac disease was one of the happiest days for our family. The diagnosis “coeliac disease” was among the suspicions of doctors for the best and the least harmful disease. We were happy, that the marathon from one doctor to another had finished and that we finally identified what was wrong and how we can help our daughter«. 

 CE regions have different knowledge capacities. To close the knowledge gap between HCPs and to improve their knowledge as well as diagnostic process, we have prepared e-guidelines protocol for celiac disease treatment.

E-guidelines protocol of celiac disease treatment.pdf

PROJECT NEWS

21.10.2017

News

»Mentoring service for newly diagnosed patients« - pilot event In Maribor

We are putting (chronic) patient into a center, for which self-management is a very important issue to leave independent and a high quality life. To achieve this goal, we have to offer a comprehensive education model as well as health care service.

Educational pilot project event in a frame of »Mentoring service for newly diagnosed patients« was held last Saturday in Maribor in organization and cooperation of Municipality of Maribor, Slovenian celiac society, University medical center Maribor and E-zavod from Ptuj.

Almost 70 newly diagnosed patients and mentors attended the event which took place at “Izobraževalni center Piramida Maribor”.

We presented the Focus IN CD project, comprehensive celiac disease management model, which is one the main aims of the project. Our professionals gave lectures about the facts of celiac disease (doc. dr. Jernej Dolinšek, dr. med), about a gluten-free diet (mag. Aja Kocuvan Mijatov), about a psychosocial aspects of living with chronic disease (Jernej, Vidmar, univ. dipl. psih.) and about the rights of chronic patients and financial incentives available to chronic patients (Simona Ornik). Cooperation is crucial, Inflammatory bowel disease society President Ms. Mateja Saje, presented a very well organized educational concept of their society. A video tutorial »How to rearrange gluten-free kitchen« was prepared and presented by »FERI« students’ Špela, Domen and Patrik. After the lectures session, we tasted a safe glute-free pumpkin soup and homemade gluten-free bread, backed by Ms. Majda Jurše, who took care also of the basic bread baking workshop for new patients, which was organized in the afternoon.

The third part of the startup self-management event »A gluten-free shopping« will be organized on Thursday, 26. October 2017. Main topics: how to choose and buy safe gluten free products, how to read the declarations, how to recognize the traps and avoid future problems. New patients will be mentored by Simona Ornik.

All activities in a frame of pilot activity will hopefully led to a new social innovation service, offered permanently by celiac societies, Slovenian celiac society and Celiac society from Novo mesto. Our partner societies from Budapest and Rijeka will join us at later stage and probably adapt and adjust new service to their needs.

21-22.9.2017

News

20 YEARS OF TRANSNATIONAL INTERREG COOPERATION IN CENTRAL EUROPE

Jasmina Dolinšek presented the Focus IN CD project and won the award

for the best presentation in the field of innovation.

 

20 years ago the first transnational Interreg programme was launched for central European regions and cities. What started with Interreg IIC CADSES has evolved into today's Interreg CENTRAL EUROPE. Since 1997 transnational cooperation has helped hundreds of great ideas come true.

We celebrated this anniversary with a major conference, which have been organized from 21th to 22th September 2017 in Berlin, Germany. We took a closer look at what transnational cooperation has done for central Europe and discussed the role of our programme and projects beyond 2020. Last but not least we have opened a new call for proposals at the conference.

The most important topics at the annual conference were:

  • Cooperating for Success: How Interreg has Changed Central Europe?
  • Taking Cooperation Forward: How Can Transnational Interreg Cooperation Shape Central Europe in the Future?
  • Launch of the 2017 Call for Project Proposals.
  • Cooperation Stories from Central Europe ( Innovation | Low Carbon | Environment and Culture | Transport).
  • Networking.

The conference was attended by representatives of the Municipality of Maribor:

  • Jasmina Dolinšek (Focus IN CD project), M.Sc., undersecretary, project manager
  • Alenka Likar Mastnak (NewPilgrimAge project), M.Sc., project manager

 

Jasmina Dolinšek presented the Focus IN CD project and won the award for the best presentation in the field of innovation.

PROJECT IN NUMBERS

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PARTNERS

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TOOLS

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PILOT PROJECTS

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POLICY RECOMMENDATION

project duration

Start Date

June 2016

End Date

may 2019

contacts